My Journey

  • SO YOUR SAYING THERE’S A CHANCE

    I’ve been a bit derelict once again in my updates. I promise it’s me not you. The reality is I haven’t wanted to write until I could bring together...
  • WHEN OTHER CANCER PATIENTS PASS AND THE WORDS WE USE

    It’s hard to really explain the feelings that arise every time I read about another person passing from cancer. Whether local or distant, close or ...
  • FRAMING YOUR NARRATIVE

    I’m a procrastinator on many things. Always have been. Writing was second nature during part of this cancer journey, but lately has become more o...
  • THERE I GO HOPING AGAIN

    There I go hoping againAs I mentioned in my last post, I was given a few weeks to try hydrating like crazy to possibly dilute the bilirubin in my b...
  • MY LIVER IS A WIMP

    Time this holiday season and from my last update sure seems to fly by. For Thanksgiving we drove out to Denver to spend time with family and had a ...
  • PHOENIX TAKE 14

    Sitting in the airport after my latest trip down for this clinical trial headed home. I’m at the airport early, so I figure it’s time to do some ca...
  • AND JUST LIKE THAT THE BUBBLE BURSTS

    And just like that the bubble bursts.Just leaving the Mayo Now and thought I’d give y’all the latest right here in the parking lot.Remember when I ...
  • ALLOWING MYSELF TO HAVE HOPE

    I’ve had a few remind me I haven’t posted any health updates for a bit. They aren’t wrong. There hasn’t been much to say being in that space betwee...
  • LIVE LIKE YOU’RE DYING

    Here’s what happens when you’re flying 120mph toward the earth. Your skin flaps, eyes water beneath the goggles, you forget everything you were tol...
  • BETTER, ROUGHER, BUT NOT GOOD ENOUGH

    That's been the feelings running through my head these last few weeks. My liver numbers have been very slow to recover, which is frustrating on man...